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1. Create a National Lyme Disease Organization
a. Need a committee to hire professional person(s) to build, create, unify and run
b. Bi-laws and mission statement
c. National spokesperson
d. Petition LDA and LDF to come together and join this National Organization
e. Dissonance among main groups is destructive and must stop
f. Petition all Lyme Support groups to join
g. Hire Professional Staff
h. Hold a Summit meeting - Goals - Mission Statement; Lock them in a room; Use facilitator (imperative)
i. Develop an International Organization
j. Hold National and Regional Conventions
2. Communication - Create a National Communications System
a. Internal
b. External
3. Create a National Media Campaign
4. Create a National Lobby Day
a. On a National and State level
b. Plan in advance with two trained representatives from each state
5. National Fund Raiser - Pursue obtaining scholarships
6. Pursue support from Pharmaceuticals
7. Qualify for United Way
8. Pursue Federal Grants
9. National Protest - Rolling Protest in all state capitals including Washington. D. C.
10. Nationals Education - Create public awareness of potential for Lyme disease to be sexually transmitted.
11. Research
a. Encourage development of research to determine if Lyme Disease is sexually transmitted
b. Develop an accurate test "Golden Test": for Lyme Disease that is proven by Double-blind controlled studies
c. Research using animal testing
d. pursue support from Pharmaceuticals
e. Establish a definition of the length of "long term antibiotic treatment" in the medical community
f. Financially support the Columbia Lyme Disease Research Center-Dr. Brian Fallon
12. Reporting of Lyme Disease Cases
a. Need physician accountability for reporting Lyme Disease - A way to check to make sure all cases are reported (doctor to state health department, state health department CDC) which can be legally enforced
b. Need Legal Accountability for failure to report - By litigation and legislation
c. Determine complexity of CDC report and support changes to allow reporting process to be minimally burdensome for the physician.
d. Address confidentiality issue with insurance companies by supporting legislation that would prohibit their unnecessary access of medical records
13. Establish a National Sanctuary/Care Facility
a. Costa Rica - where treatment can be administered without doctors losing their licenses
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